“Goals of Care” decision aid for families of patients

ABOUT US

Research Team:

Name	Position	Institution
Susanne Muehlschlegel, MD, MPH, FNCS, FCCM, FAAN	Principal Investigator	Johns Hopkins University and UMass Chan Medical School
Bengisu Tulu, PhD	Co-Investigator	Worcester Polytechnic Institute
Veronica Peschansky	Co-Investigator	UMass Chan Medical School
Aqsa Khan	Clinical Research Assistant	Johns Hopkins University
Charles Hill	Clinical Research Assistant	UMass Chan Medical School
Adam Kalayjian	Research Developer	Worcester Polytechnic Institute

Former Team Members:

Name	Position	Institution
Carlie Flanagan	Research Developer	Worcester Polytechnic Institute

Funding Source:

National Institute of Nursing Research (NINR) Grant R21 NR020231
Stimulating and Advancing Research (StAAR) Investigator Award Johns Hopkins University, Department of Anesthesiology & Critical Care Medicine

Publications:

Khan MW, Muehlschlegel S. Shared Decision Making in Neurocritical Care. Neurol Clin. 2017 Nov;35(4):825-834. doi: 10.1016/j.ncl.2017.06.014. Review. PubMed PMID: 28962816.
Quinn T, Moskowitz J, Khan MW, Shutter L, Goldberg R, Col N, Mazor KM, Muehlschlegel S. What Families Need and Physicians Deliver: Contrasting Communication Preferences Between Surrogate Decision-Makers and Physicians During Outcome Prognostication in Critically Ill TBI Patients. Neurocrit Care. 2017 Jul 6. doi: 10.1007/s12028-017-0427-2. [Epub ahead of print] PubMed PMID: 28685395.
Cai X, Robinson J, Muehlschlegel S, White DB, Holloway RG, Sheth KN, Fraenkel L, Hwang DY. Patient Preferences and Surrogate Decision Making in Neuroscience Intensive Care Units. Neurocrit Care. 2015 Aug;23(1):131-41. doi: 10.1007/s12028-015-0149-2. Review. PubMed PMID: 25990137; PubMed Central PMCID: PMC4816524.
Muehlschlegel S, Shutter L, Col N, Goldberg R. Decision Aids and Shared Decision-Making in Neurocritical Care: An Unmet Need in Our NeuroICUs. Neurocrit Care. 2015 Aug;23(1):127-30. doi: 10.1007/s12028-014-0097-2. PubMed PMID: 25561435; PubMed Central PMCID: PMC4806789.
Goals-of-care decision aid for critically ill patients with TBI: Development and feasibility testing. Muehlschlegel S, Hwang DY, Flahive J, Quinn T, Lee C, Moskowitz J, Goostrey K, Jones K, Pach JJ, Knies AK, Shutter L, Goldberg R, Mazor KM. Neurology. 2020 Jul 14;95(2):e179-e193. doi: 10.1212/WNL.0000000000009770. Epub 2020 Jun 17. PMID: 32554766; PMCID: PMC7455326.
Adapting a Traumatic Brain Injury Goals-of-Care Decision Aid for Critically Ill Patients to Intracerebral Hemorrhage and Hemispheric Acute Ischemic Stroke. Goostrey KJ, Lee C, Jones K, Quinn T, Moskowitz J, Pach JJ, Knies AK, Shutter L, Goldberg R, Mazor KM, Hwang DY, Muehlschlegel S. Crit Care Explor. 2021 Mar 9;3(3):e0357. doi: 10.1097/CCE.0000000000000357. PMID: 33786434; PMCID: PMC7994105.